It's That Time
prayer partners, I hope all is well!
September 28, Jonah, Elijah, and I (Lygia) will be headed
to Cincinnati Children's Hospital for 2 weeks. Will you
pray for us again this time? Honestly, we don't even want
to attempt this trip without knowing you are praying.
The boys will participate in
Intensive Therapy sessions this time, which will be Monday
thru Friday for 2 weeks. They will work on strengthening
arms, legs, hips, and other areas that are problem areas
for Ehlers-Danlos. They will also get to meet other boys
their age who have the disease. We did this once before,
almost 2 years ago, and it was so helpful that literally,
Jonah went from being wheelchair bound to walking within
a month. It's a good thing we're going...Jonah is in a wheelchair
again now. He fell at circus and is not able to walk right
now. He is very discouraged, so we are praying that God
will use this Intensive Therapy session to motivate, strengthen,
and encourage him. Please pray with us!
I haven't yet stopped to count
how many appointments we have this time, but we will be
seeing cardiology, GI, urology, neurology, and orthopedics
while we are there. We definitely have a full schedule.
We do have a huge prayer request
regarding Elijah. He will be tested this time for Vascular
EDS. This is the most deadly type of the disease. With blood
vessels rupturing in his urinary tract and high blood pressure
and other concerns, this test has become extremely necessary.
Elijah's most recent problems have occurred with his teeth.
His baby teeth are randomly abscessing and he's already
had 4 pulled. He has to have 6 more pulled this week before
we leave. The doctor doesn't know why this is happening,
and can't guarantee it won't happen to his permanent teeth.
This does, unfortunately, point to Vascular EDS. The blood
test for this type of EDS is costly and we've had a hard
time getting it approved for Elijah. Genetics called a few
days ago and said that if it isn't approved by the time
we get to Cincinnati, they would go ahead and extract DNA
anyway, and test it when the approval comes. First of all,
would you please pray that this test is approved? Then will
you pray that the doctors will get a clear picture of what
is going on? OF COURSE you can pray that he DOES NOT have
Vascular EDS. But please also pray for ANSWERS and a clear
picture of how to help Elijah.
So we are in for some heavy
information and diagnoses this trip. But we will survive
it. God is on our side and we have you guys standing in
the gap for us. We are so blessed; we are so grateful!
Also would you PLEASE PRAY
that we will be able to stay at the Ronald McDonald House
this time? Since there are only 3 of us going, our chances
One of our very dear friends
has started a ministry called Wonderfully Made. She makes
hats for babies in hospitals. Both Cincinnati Children's
Hospital and STL Children's Hospital has agreed to accept
these precious hats. In an effort to help us with the expenses
of our trip, which are great, she has developed this strategy.
Would you please read her explanation below and if you able
would you consider donating? We would be so grateful. Also,
if you are interested, we continue to sell fundraiser t-shirts
and books on our website to offset our hospital costs. Thank
you so much!
Lygia, for all
Hi, my name is Delynn
Culp. Most of us know that the Lovelace family has to travel
several times a year to Cincinnati for testing and treatment
for their children. My sister and I make children's hats
and are sponsoring a Hat Challenge Fund Raiser to help the
Lovelace family with those expenses as they travel to Cincinnati
Children's hospital Sept. 28 - Oct. 11. The way this works
is that you, their family and friends, go to their website,
kenlovelaceministries.com, and donate 25.00. This sponsors
a hat that will be donated to a child at Cincinnati Children's
Love In Him,
Wonderfully Made - Psalms 139:13-14
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