Daily Updates: May 16-28
by Lygia Lovelace
- Pre-trip Update (Saturday, May 16)
I just wanted to let you know
that we are still in St. Louis; we will not be leaving until
tomorrow (Sunday, May 18). Because of Elijah's precarious
blood pressure and health issues right now, Cincinnati Children's
wanted to postpone the endoscopy until AFTER Elijah sees
the cardiologist on Wednesday. So, we get to worship with
our church family tomorrow morning (YES!) before we leave
town. That is truly a blessing. What a way to start off
The other side to this story
is that the endoscopy is now tentatively scheduled for Tuesday,
May 27 (the day after Memorial Day), which means that Elijah
and I will probably have to stay an extra few days. I will
keep you updated on all of this through our prayer team
letters, as the week progresses.
If you have not already signed
up to be on our prayer team, and you are willing to pray
for us as we spend these next days in Cincinnati, please
let us know! We value you prayer support -- it's what we
need the most! Contact us and we will add your email address
to the group.
Thanks again for your prayers
and concern. We truly love you all.
For this God is our God
forever and ever;
He will be our Guide,
even to the end!
- Day 1 - Travel (Sunday, May 18)
Dear Prayer Warriors:
Thank you so much for committing
to pray for us during these difficult days. Lygia left around
2:30 with Brooklyn, Chase, Jonah, and Elijah and arrived
in Cincinnati around 1130pm.
They'll have the first of many
doctor's visits first thing in the morning. Please pray
for safe travels, wisdom for the doctors, and God's provision.
I'll keep you updated each day.
God's blessings on you,
Dr. Ken Lovelace
Cincinnati - Day 2 -
Busy Day (Monday, May 19)
Dear Prayer Team:
Here's today's update from
Hello everyone! I love the
shirt that Elijah is wearing (see below). It's a good one
for us! Even in our weakness, we will NEVER STOP praising
the name of Jesus! We will NEVER STOP persevering through
the trials. We will NEVER stop telling of the goodness of
We have heard from many of
you, assuring us of your prayers. Thank you so much! We
wouldn't even want to try to do this without your support.
Today was an exhausting day,
but it was a good day. Brooklyn had a physical therapy evaluation
this morning. Definitely she will be planning hip surgery
some time this summer. According to the geneticist, this
is a common surgery among EDS patients and it is a fairly
We met with the geneticist
from noon until after 5pm! The boys were able to participate
in a research study, which involves the affect EDS has on
boys going through puberty. They answered tons of questions
about the disease and how it affects them in their daily
life. Then, the geneticist met with each bionicle individually,
discussing problems, questions, and options for treatment.
By about 4:00, my brain started hurting. Thinking can be
painful! lol We are so thankful for these doctors who know
Tomorrow we have another full
day. From 9am until noon, each bionicle has an occupational
therapy evaluation to talk about hand and arm strengthening,
tremors, etc. The therapist will work on a splint for Chase
that will help with his guitar playing. Tomorrow afternoon,
both Jonah and Elijah have GI appointments.
1. Please pray that we will
continue to be a witness for Christ.
2. Please pray for Ken & the kids while we are gone.
This is hard and stressful for them. We are so thankful
for those who are able to help with childcare this week.
3. Please pray that Elijah will be cleared for the endoscopy
next week, and that we can find a solution to his and Jonah's
4. Please pray that the bionicles will keep smiling (and
me too)! Pray for encouragement and JOY this week.
5. Please pray that if it is God's will, we will get into
the Ronald McDonald House this week.
Again, THANK YOU so much for
agreeing to walk through this journey with us. We love you
Cincinnati - Day 3 -
Not A Fun Day (Tuesday, May 20)
Dear Prayer Warriors:
Thanks for praying for us.
Sorry this is so late, just got home from work. Please see
Lygia's update below:
Hello everyone. I can't tell
you how much we have needed you today. Thank you so much
Today was not fun. We spent
all morning in occupational therapy. They worked with Elijah
on his right shoulder--it has been popping in and out of
joint frequently. He will be doing some strengthening exercises
daily to strengthen the muscles around the joints for more
stability. Chase got a splint to use for his left hand while
playing his guitar. He also got some finger splints, as
he tends to hyper-extend his fingers, which can also cause
pain. He will be doing some daily exercises to strengthen
his hands and wrists. Brooklyn got a good report--her hands
and grip are doing fairly well.
However, when we got to Jonah,
he failed the hand strengthening and grip testing. He will
be doing quite a few daily exercises and will really need
some more aggressive treatment to protect the use of his
hands. We will be talking more about this with the physical
therapist on Thursday. Admittedly, with all Elijah has gone
through these past months and with other stresses, Jonah
has fallen behind on his therapy exercises. I just felt
so bad about how Jonah's weakness has progressed. Sometimes
I just want the doctors to give us pills and say, "Take
this and everyone will get better." EDS doesn't work
that way. It's hard work--3 steps forward, 2 steps back--and
lately it feels like we've gone farther and farther back.
It's easy to get discouraged and I've really struggled with
After a hurried lunch, Jonah,
Elijah, and I rushed to the GI appointment. Elijah's endoscopy
is still scheduled for next Tuesday, May 27. Tomorrow he
will see the cardiologist, who will give the final OK. Jonah
has some GI issues that he would rather I not discuss too
fully. However, with his GI exam today, and the fact that
he's lost about 15 pounds since the last time we were in
Cincinnati (October), he will be tested for Crohn's disease
and both Elijah and Jonah will be tested for Celiac disease.
Jonah will have a full workup as soon as they can get him
in--endoscopy and colonoscopy. I asked (ok I begged) for
them to do this next week, since I have to stay behind with
Elijah anyway, for his endoscopy. They are going to try
and work it out but they said scheduling it for next week
would take a miracle. I told the nurse, "I believe
in miracles! I'll pray. God can work miracles." She
smiled politely and said, "OK then, you can pray. The
only way it will happen is if we have some kind of cancellation...but
you go right ahead. You pray."
So will you pray with me? I
want to do this in God's timing, of course, so I want to
pray according to His will. Will you pray that we can get
Jonah's testing done next week as well, if this is God's
will? And will you pray in regard to these digestive diseases,
that God will either remove them in the boys or give them
the strength to endure them?
Midway through Jonah's GI exam
and consultation, Elijah burst into loud sobs. I think he
had just had enough. I held him and we talked through it,
but he couldn't really say why he was so upset. Even the
doctor tried talking to him. To be honest, after Elijah's
outburst, I think we all wanted to sit down and have a good
cry (even the doctors).
So tonight was the PERFECT
night to see some VERY DEAR friends from Dayton who also
have EDS. We had dinner together and swam and laughed and
played together. God knew just what we needed. Here is a
picture of their silliness tonight. A joyful heart is good
Tomorrow is another very full
day. We will start off with Elijah at 9am, who will have
a 2 hour session of pelvic floor therapy. He is still having
to train the bladder to empty, and this is hard work. Then
both Jonah and Elijah have EKGs tomorrow and will see the
cardiologist who specializes in POTS and EDS. We will be
discussing Elijah's mysterious blood pressure wars and what
to do about it. Elijah will also see one of his favorite
doctors, the urologist, tomorrow--Dr. Jackson. She is an
older lady who has just been such a blessing to us.
How can you pray?
1. Please pray that all doctors,
nurses, and everyone else will see Jesus in us.
2. Please pray for Jonah's testing, that if God wills it,
we can get it done next week!
3. Please pray for BURSTS of JOY throughout the day.
4. Please pray that God will give the cardiologist and urologist
wisdom as they try to
sort out Elijah's hematuria and high blood pressure.
You all are such a blessing
to us. Thanks for listening, and thanks for praying. We
Lygia, Brooklyn, Chase, Jonah,
Cincinnati - Day 4 -
A Day of Miracles (Wednesday, May 21)
Dear Prayer Team:
Please read Lygia's update
Hello everyone! What a great
day this was! I could hardly wait to get back to the hotel
this evening to tell you about it.
First of all, we started our
day with a pelvic floor therapy "video game".
Can you believe it? When attached to a machine, Elijah could
make a dolphin swim and dive by strengthening his pelvic
floor muscles. This teaches him which muscles to use when
voiding his urine so that he will be more successful in
emptying his bladder. He also had to keep a different kind
of fish on a certain track by keeping his stomach muscles
relaxed. He did great and smiled through most of it. Later,
as we were leaving, he said, "Hmmm...I wonder if there's
an app for that!" lol Outburst of JOY!
Later that morning, while Jonah
and I were at cardiology, the hospital called my cell phone
to say that they had scheduled Jonah's endoscopy and colonoscopy
for MAY 27, IN THE MORNING!!! IT WAS SCHEDULED AT A PERFECT
TIME, DUE TO A CANCELLATION!! IT WAS THE MIRACLE WE PRAYED
FOR!!. I hung up the phone and told one of the cardiologists
all about how God works miracles! She wasn't too impressed,
but I just couldn't help myself!! God is so good! Outburst
As we were leaving cardiology,
I was praying, "God, I wish so much that I could just
see that GI nurse--to remind her that I prayed and that
YOU made the difference!! Would You not let her miss that,
God?" About a half hour later, SHE WALKED BY while
we were eating our lunch downstairs. She saw me and stopped.
"Hey!" she said, "Did scheduling call you?"
I was THRILLED. I got to talk about how God is a God of
miracles and how He answers prayer. That was so nice of
God to let me be the one to tell her. She walked away with
a smile on her face, so I pray a seed was planted! Outburst
Later, when Elijah met with
Dr. Jackson (the urologist), we got some encouraging news
again. She thinks she has found why he's having all of these
blood pressure, hematuria, kidney pain wars. He has a tube
from his kidney to his bladder that is undersized--and with
all the fluid he drinks for his heart condition, this is
apparently aggravating his whole urinary system. This must
be fixed surgically, but it could be a great success. First,
however, they've got to run more tests (an MRI, renal scan)
to make sure this is the problem. Please pray for this--that
God would continue to show them where the problems are coming
from. And please pray once again that these tests can be
done next week, while we are still here!
While we were there, Dr. Jackson
looked at Jonah and said, "Jonah I'm SO PROUD of you
for walking now! I remember seeing you in a wheelchair before,
and now you look so strong! What do you think has helped
you the most to get out of the wheelchair?"
Without missing a beat, Jonah
said, "Prayer. God did it. And also the intensive therapy
program here at the hospital really helped me."
Dr. Jackson smiled and said,
"You're right, Jonah. Prayer really makes a difference."
I smiled all the way out the
door. God is good!! Talk about outbursts of JOY throughout
the day. It was AWESOME!
Another time during the day,
a DEAR friend walked into the waiting room to say hello!
She is an OT who lived in Dallas when we were there several
years ago. Now she lives and works in this area. She made
us laugh and encouraged us all the way until our appointment.
Outburst of JOY!
And Jonah saw Ronald McDonald
at the Hospital and they took selfies together (see attached
picture). This made us all laugh. You never know who you'll
see at Cincinnati Children's! (No, we haven't heard from
the Ronald McDonald House yet...please keep praying!) Outburst
Beginning tomorrow, Elijah
will wear another 24 hour blood pressure monitor. The cardiologist
believes that Elijah's blood pressure medication is worsening
his syncopy and falling. Over the past few months, he has
fainted and hit his head, fallen down the stairs and injured
his ankle, and dislocated his wrists and shoulder several
times. He has always struggled with syncopy, but it has
worsened over the past months. If his blood pressure presents
itself as fairly normal on the 24 hour monitor, then Elijah
will get off the medication. Then we will have to wait a
few weeks and do another 24 hour monitor to see how he's
doing without medication. We will also monitor Elijah's
fainting and falling (which makes me a nervous wreck anyway!)
over these weeks to see if the cardiologist's theory is
correct. It may be necessary to stay on the bp meds until
this kidney problem is sorted out...so we will be monitoring
him closely. I will be praying a lot about this during these
next few weeks!
Tomorrow we have physical therapy
appointments. It will take most of the day. They will get
orthotics for their new shoes, so they can wear them! Also,
Jonah has a bone evaluation and will see a spine specialist
for his back pain. Brooklyn has a tour at Cincinnati Conservatory
tomorrow. She is considering this school for her master's
Please pray for her as she
seeks God's will in which school to attend...there are several
she is interested in.
1. Please spend some time PRAISING
GOD for the answered prayers we've had today!
2. Please continue to pray that others will see Jesus in
3. Please keep praying for God's will regarding the Ronald
McDonald House and for God's provision.
4. Please pray that Elijah's testing can be done next week
while we are still here. Pray for God's will concerning
this surgery and his blood pressure issues.
We love you all! Lygia, Brooklyn,
Chase, Jonah, & Elijah
Cincinnati - Day 5 -
God is Faithful (Thursday, May 22)
Dear Prayer Warriors:
Here's the update from Lygia:
Hello everyone--what a day!
Again, it was full of ANSWERED prayer. We started the day
with an anesthesia consult for Elijah's endoscopy this coming
Tuesday. They took his blood pressure and it was too high,
so I thought they were going to cancel the endoscopy. They
asked many, many questions and consulted with several doctors.
In the meantime, we were praying God's best! After about
90 minutes of consultation, they decided to do the endoscopy,
with careful monitoring. Praise God! Now we must begin praying
heavily that they will capture the bacteria that they need
to find during the endoscopy. Jonah will also have an endoscopy/colonoscopy
on that same day for the Crohn's testing. HOW IN THE WORLD
am I going to be with both boys? Jonah's testing is at noon
and Elijah's is around 3pm. Please pray that this will not
be too stressful, as I try to spend time with both boys.
Brooklyn will be with us part of the time until her orthopedic
appointment at 3pm, so that will help.
After the consult, the 3 boys
& I went to physical therapy for their evaluation. It
was...OK. The physical therapist is WONDERFUL and knows
SO MUCH about EDS, but she's also scary. lol The boys have
both gotten weaker since we last saw her in September, and
she fussed at them for neglecting their intensive therapy
exercises. Ideally they are supposed to do an hour and a
half's worth of home therapy PER DAY to keep the muscles
around the joints strengthened. We have a book to go by
and everything...we've just neglected it. And though Jonah
appears stronger in his legs, he has actually gotten a lot
weaker over the past few months. Elijah too. She understood
that we have had a rough few months with health issues,
but she was still very firm with the boys. Correction accepted.
We will get back on the therapy when we get home!
This was the first time this
therapist had evaluated Chase. She gave him home exercises
as well. All 3 boys received orthotics for their shoes.
After PT, we had to RUN to
Jonah's next appointment, orthopedics. After reviewing x-rays
of his vertebrae, he will have to being intensive back therapy.
Back pain is typical in kids with EDS. The orthopedic doctor
gave us instructions for our PT in St. Louis that explain
the kind of PT that Jonah will need.
From orthopedics we went to
cardiology to have Elijah's 24 hour bp monitor put on. His
bp was high when they put it on, so I'm not sure he's going
to be able to do without his blood pressure medication.
We will see what God does.
Brooklyn had a great day touring
Cincinnati Conservatory. She even got to practice in one
of their practice rooms. After picking her up we had a relaxing
dinner with some friends and then back to the hotel.
Tomorrow Ken & the kids
will drive here to spend the weekend with us. WE CAN'T WAIT!!!
We have been saving our money for a long time for this special
weekend. It is also Elijah's birthday weekend--his birthday
is Sunday. He will be 10 years old! Sniff...
God did an AMAZING miracle
today...last night when I pulled cash from my cash envelope,
there was only $20.00 in the envelope. I knew that would
not be enough for meals for today, so I just prayed about
it and told the Lord I wasn't worried, that I knew He would
provide. I told Chase about it, and I just put the money
away and went to bed. Today at lunch, I pulled the cash
out and IT WAS A $50.00 BILL INSTEAD!! Chase and I both
just stared at it. It was enough for the day! It's true!!
God gives us our daily bread and He is FAITHFUL. He is enough!!
He is ALL WE NEED! Praise God from whom ALL blessings flow.
Tomorrow all 3 boys will see
neurology. Chase and Jonah will go to the Tremor Clinic
and Elijah will go to the Migraine Clinic. Please pray that
things go smoothly, and that the doctors will have wisdom
on how to help the boys. I am VERY careful about meds, and
I'm not sure we want to go that route. Pray that God will
give me wisdom about that as well.
1. Please pray that we will
be a shining light while we are here--a true witness for
2. Please pray that this testing the boys have on Tuesday
will be successful--that we get the bacteria we need from
Elijah's biopsy, and that we get good results on Jonah's
3. Please pray for our endurance. We walk a lot here, and
Brooklyn and Elijah are really struggling with every step.
Elijah has already used the wheelchair a few times.
4. Please pray for wisdom in today's appointments and a
clear picture on the bp monitor of what's going on with
5. Please pray for a fun and safe weekend with the rest
of our family.
Do you know how much I love
you and depend on you all? You are a true blessing in our
lives. Thanks so much for your love, prayers, and concern.
Lygia, Brooklyn, Chase, Jonah,
Cincinnati - Day 6 -
Together At Last (Friday, May 23)
Dear Prayer Warriors:
I hope you are well. Please
see below for Lygia's update for today. God's blessings
Hello everyone! Isn't it great
to have a 3 day weekend? Brooklyn and I counted all of the
appointments we went to this week (starting Monday) and
we counted 26 so far. 26 appointments!
We began our appointments early
this morning in neurology. Chase & Jonah went to the
Tremor Clinic. We were THRILLED to meet the neurologist
and to find out that he is involved in a church plant in
Cincinnati!!! Isn't that awesome? He spent several hours
evaluating Chase and Jonah and diagnosed them both with
postural tremors. These tremors are not necessarily tied
to EDS but they are definitely genetic. There is medication
to slow down the tremors, but first we are going to try
some specific occupational therapy and see if that helps.
Elijah was evaluated as well, for headaches and for the
"hot spot" that he has in his neck. We are going
to start him on some regular medication that will help with
this "misfiring" that is happening in his nervous
After neurology, Elijah got
his 24 hour blood pressure monitor taken off. He hasn't
felt well today--he used the wheelchair part of the day
and has been fussy. But seeing Daddy and the rest of the
sibs really cheered him up! It has cheered us ALL up!! We
are so happy to be together again as a family. What a great
weekend this is going to be! :-)
All tests are now scheduled
for next Tuesday and Wednesday. Tuesday will be Jonah's
GI testing for Crohn's disease and Elijah's endoscopy to
take the biopsy of his stomach/colon. Brooklyn has an appointment
with an orthopedic doctor on Tuesday afternoon for a 2nd
opinion on her hip surgery. On Wednesday, Elijah will have
a lasix renal scan. They will be looking for the tube that
they suspect is undersized. Please, please pray that they
find what the problem is. The urologist explained to me
that if there's not a flare up, they may not see the tube
malfunctioning in the scan. PLEASE pray for a flare up,
if this is indeed the problem. I know that seems like a
funny request, but Elijah would feel so much better if we
could find this problem and get it repaired.
Today when we were walking
around Cincinnati (waiting until 3pm to get the blood pressure
monitor removed, we came across the sign "altar'd state"
(see attached picture). I love it!! In Christ we are in
an "altar'd state", don't you think? We place
ourselves on the altar, in total submission to His will
for our lives: through sickness, through health, through
poverty, through provision...no matter WHAT God allows in
our lives, we are "altar'd" for Him. I want to
be totally "altar'd". Don't you?
If you can this weekend, please
continue praying for our journey here in Cincinnati.
1. Please pray that we would
be a witness here for Christ.
2. Please pray for the testing that will take place on Tuesday
and Wednesday. Pray that they go smoothly (Jonah's will
be a little rough, with an endoscopy AND a colonoscopy)
and that the biopsy and kidney test will be a success. Pray
God's will for these results.
Many, many, MANY thanks to
our friend Andreana Setser from Dayton,OH who lovingly took
our dirty, disgusting 2 huge trashbags of laundry home with
her and washed our clothes!! That has ministered to us so
much. We thank you and we love you!
Many, many, MANY thanks to
all of YOU who have prayed for us, encouraged us, stood
in the gap for us, and loved us. We love you!
Lygia, Brooklyn, Chase, Jonah,
(...and all the rest of us...)
Cincinnati - Day 7 -
Elijah (Saturday, May 24)
Dear Prayer Warriors:
Thanks for lifting us up before
the Lord. We need you more than you know. Please find Lygia's
update below...and when it comes to praying, please, don't
stop now. -- Ken
Tomorrow is Elijah's birthday...his
Double Digit Day! He will be 10 years old. All day today
I kept asking him, "Are you enjoying your last day
to be 9?"
Right before I got pregnant
with Elijah, I miscarried. It doesn't seem like so long
ago. I was 40 years old and wanted one more bionicle. When
I miscarried, I also lost an ovary. The doctor recommended
we not have any more bionicles....since I was older and
my chances of getting pregnant were less. I was devastated!
I went home and prayed. I asked God if I could have just
one more baby. He said yes.
Several months into the pregnancy,
I was reading my Bible and felt strongly impressed that
the baby was a boy and we were supposed to name him Elijah.
I didn't say anything about it, thinking I could have possibly
misheard. An older lady in our church--one whose walk with
the Lord I loved and respected, came to me a few days later
and said that God told her my baby was a boy I was supposed
to name him Elijah. Wow! I didn't doubt God's words after
that. I had heard right!
...and Elijah Gannon Lovelace
was born on May 25, 2004.
This past year with Elijah
has seemed like Mr. Toad's Wild Ride...so many health scares.
If you asked him, Elijah would tell you that his favorite
verse is Jeremiah 29:11: "For I know the plans I have
for you," declares the Lord, "plans to prosper
you and not to harm you, plans to give you hope and a future."
I know he has clung DESPERATELY to this verse this year.
So have I.
We are hoping and praying for
a better health year as he begins his 10th year...but even
more important than that is his walk with the Lord. I would
be so grateful if you would pray with me for him--that through
all of this, he would learn to love and depend even more
on the Almighty God. After all, that is what life on this
earth is all about!
Along with this, our 2nd most
important prayer request is for his health right now. This
weekend he has a cough and doesn't feel great. He cannot
have any respiratory issues if they are going to run these
tests next week. We do NOT want them to postpone them. I
am hoping to go home this next week--and so far we can't
go home until at least Thursday. Would you please pray that
he does NOT develop a cold or a cough, so that he can remain
healthy for the testing he will get on Tuesday and Wednesday?
Thank you so much.
Many blessings. We love you
all. Thank you so much for praying for us during this time.
Cincinnati - Day 8 -
Happy Birthday Elijah (Sunday, May 25)
Please find Lygia's update
for today below. God's blessings on you!
We are so encouraged today!
Elijah smiled all day, with almost NO COUGHING!! THANK YOU
for your prayers! He & Jonah should be "good to
go" for their testing. Another miracle is that both
boys are allergic to chlorine, but they did GREAT swimming
this weekend with very little rash. It has truly been an
At midnight Jonah starts his
"no eating" in prep for his colonoscopy, so he
is eating everything in sight right now!
Tomorrow morning we get to
go to the Creation Museum in Cincinnati for FREE! (Thank
you Jamie Hitt & Ken Ham!) Then, Ken (my Ken) &
the kids (Chase added) will go home, while Brooklyn, Jonah,
Elijah, and I go back to the hotel for another week of tests
and appointments. I was tearful and dreading it yesterday,
but today we had church in our hotel room (we missed you,
church family!) and Ken led a Bible study on "Why God
allows His children to suffer." It was so helpful!
The kids asked a lot of questions and we spent time in prayer.
I feel re-charged and ready to go again...we are not really
looking forward to it...but we are ready! ...ready for what
God has for us!
1. Please pray that others
will continue to see Jesus in us!
2. Please pray for an easy prep time for Jonah. His colonoscopy
is not until late afternoon on Tuesday. I feel concerned
about his POTS (heart) condition and going so long without
eating. A friend wrote us today about the colonoscopy and
it reallly encouraged us. (Thank you Teresa Deevers!)
3. Please continue to pray for ANSWERS and WISDOM for the
doctors in all this testing.
4. Please don't forget to thank God for all of His answers
We love you all and are praying
for you as well! THANK YOU for taking this journey with
Lygia, for all
Cincinnati - Day 9 -
Memorial Day (Monday, May 26)
Thank you so much for your
continued prayers. It was a tearful day as I had to come
back to St. Louis and Lygia and the gang stayed in Cincinnati,
but we greatly enjoyed our time together as family. Please
see Lygia's update below:
Hello everyone! I hope you
had a blessed Memorial Day.
We spent an AWESOME morning
at the Creation Museum here in Cincinnati. We had so much
fun! The attached picture shows some of the kids in front
of the portrayal of the Garden of Eden.
After our fun time there, Ken,
Chase, Grayson, Josiah, Emalee, & Emerson left to go
back to St. Louis, and the rest of us came to the hotel
(again) here in Cincinnati. We called the Ronald McDonald
House again, but they are still very full, with a long waiting
Poor Jonah has been doing his
colon prep all day before his colonoscopy tomorrow. :-(
I feel so sorry for him. Elijah has played with his birthday
toys and enjoyed the day. I am overwhelmed at the friends
God has given us in this area! Today we had some wonderful
friends from Kentucky who came to the hotel and then took
us (except for poor Jonah) to supper!
Tomorrow around 11am we will
leave for Same Day Surgery at Cincinnati Children's Hospital.
Elijah's endoscopy is at 1:15 and Jonah's endoscopy &
colonoscopy are at 3:15. What a day it will be! My dear
friend Pam has offered to come and help me "be there"
for the boys while Brooklyn has her ortho appointment. I'm
1. Please pray that others
will see Jesus in us tomorrow! Pray for our joy & endurance.
2. Please pray that Jonah will be encouraged and have strength
to continue thru with the colonoscopy. He's done OK so far!
Praise the Lord!
3. Please pray for the testing, that the doctors will find
the problems. Pray that Elijah's biopsy will be successful,
and that they capture the bacteria they are looking for.
4. Please pray for Brooklyn as she gets another opinion
regarding her hip surgery. She also needs wisdom about whether
to have the surgery here or in St. Louis.
Thank you for hanging in with
us this far. I hope you are not getting tired of all of
my letters. We love you all so much and are so grateful
for your prayers!
Lygia, Brooklyn, Jonah, &
Cincinnati - Day 10 -
A Marathon Day (Tuesday, May 27)
Thank you for hanging with
us as we continue in need of your standing in the gap for
our family. Please find Lygia's update below:
Today was a marathon. We arrived
around 11am at Children's Hospital and didn't leave until
around 6pm. Elijah had his endoscopy and Jonah had his endoscopy
and colonoscopy. Brooklyn also had an orthopedic appointment.
ELIJAH: The endoscopy
showed many areas throughout his esophagus and stomach that
were affected with the Hpylori. This certainly explains
his GI problems! The doctor was able to take many biopsies
and they have been sent to a research hospital in Utah.
They took more biopsies to be examined here for other possible
problems. Elijah came through it great and was eating packages
of crackers by the dozens within a few hours.
JONAH: I was so glad
when Jonah finally received IV fluids and went back for
his testing. He had really gotten pale and dizzy and just
wasn't feeling well. Jonah's procedures took about an hour.
They took many biopsies. According to the doctor, the esophagus
and stomach do not look healthy. He showed me photos of
problem areas and said the biopsies would most likely reveal
what is wrong. He mentioned 3 possibilities:
1. reflux problems
2. allergies (either
to certain foods or airborne allergens)
3. Crohn's disease.
He said we should receive results by next Monday.
Jonah's colon looked fine (a definite PRAISE!), but that
doesn't rule out Crohn's disease, especially if it is in
the early stages. So we will wait and see. And we will pray.
Today Elijah and I read from Psalm 27: "Wait for the
Lord; be strong and take heart and wait for the Lord."
That is what we will do.
Something I love about coming
here is that every time a new doctor or nurse looks at Jonah's
chart, he or she will make a comment about Jonah having
been in a wheelchair. We always get questions about how
he is able to walk again. What a GREAT opportunity to talk
about the goodness of God and the power of prayer! Truly,
"...the Lord has done great things for us, and we are
filled with joy!" (Psalm 126:3) We will "sing
of the mercies of the Lord forever!"
BROOKLYN: She got some
good advice from the orthopedic doctor and will be pursuing
surgery soon--most likely in St. Louis. She is now finished
with doctor's appointments in Cincinnati this trip and can
relax until time to come home! (another PRAISE!)
God sent a very dear friend
to us today, Pam Schlomann, who sat with Elijah while I
was with Jonah (and vice versa)...I don't know how I would've
done it without her. Thank you so much, Pam! You were an
answer to our prayers! (another PRAISE!)
I never saw a kid so happy
to eat a sandwich as Jonah was today after the procedures
were done. It had been nearly 2 days since he had eaten!
(see attached picture)
Elijah still has his IV attached
from today's procedure (see attached picture). Tomorrow
morning (EARLY) he has a renal scan, which also requires
an IV. It will take about 2 hours. PLEASE pray that they
will find the problem with his kidneys. PLEASE pray for
Both boys were very brave today
and I was proud of them. They were full of questions and
uncertainties but handled everything pretty well. My FAVORITE
question of the day was from Elijah. He innocently asked,
"Mom, will they use the same scope to do Jonah's colonoscopy
and then his endoscopy?" LOL
1. Please pray that we can
continue to give a joyful testimony concerning all the Lord
has done for us! Pray that we will be a shining light.
2. Please pray that the biopsies
from today will be examined thoroughly and accurately! Pray
that God will give us strength to handle whatever journey
He has for us!
3. Please pray for the renal
scan tomorrow, that the answers to all of these kidney questions
will be obvious and even fixable--according to God's plan.
Thank you yet again for listening.
We love you all so much. YOU are a definite PRAISE in our
lives! THANK YOU for your prayers!
Lygia, Brooklyn, Jonah, Elijah
Cincinnati - Day 11 -
Renal Scan (Wednesday, May 28)
Dear Prayer Team:
Here's Lygia's update:
GUESS WHAT!! GUESS WHAT!! WE ARE HOME!!! This morning Elijah
had his renal scan. Then we went to confirm his pelvic floor
therapy session for tomorrow morning (mainly because I couldn't
remember what time to be there), and there had been some
mix-up. It wasn't on the schedule. They asked me if I wanted
them to try and get it on the schedule for tomorrow. So
I said, "Well...what I REALLY want is to go HOME."
And that's what we did. We
loaded up the van in about an hour and we left a day early.
Not only did we save another night's expense in the hotel,
but we got to surprise the other kids tonight when we arrived
home. And you know what else?
HOME is the best therapy there
Elijah's renal scan (see attached
pictures) this morning was both encouraging and discouraging.
It was mostly normal. The left kidney, the one that causes
the pain, was a little slower than the right kidney, but
other than that, there was nothing definitive for them to
make a diagnosis. To be honest, I wanted to cry. Of course
I don't WANT there to be a problem, but I want them to FIND
what's wrong!! So, as it stands now, we are sorta back at
square 1, and we will have to have the kidney biopsy done
in July. It will be done here in St. Louis, so that will
be easier. We have found a nephrologist here in STL that
we like, who willingly works with Cincinnati Children's
on Elijah's issues.
I would be so grateful if you
would keep praying for this whole kidney process with Elijah.
Admittedly, he is doing OK right now--there's not a "flare
up." We haven't seen blood in his urine in about 2
weeks and he's not had the back pain or the really high
blood pressure...so we will just have to wait and see what
happens. Sometimes waiting is the hardest! I read somewhere
that the word "wait" appears over 100 times in
the Bible. I believe it, don't you? This waiting develops
patience and trust in the Almighty.
So we will wait, and we will
I guess this will be my last
email update for awhile, until we get test results and/or
diagnoses from all of the biopsies they took...I'd like
to keep you posted if you don't mind. THANK YOU so much
for taking this journey with us. I will miss the daily correspondence.
You have blessed and encouraged us more than you know.
And me? I feel like I need
to be constantly in the Word for about a week. I have missed
my Bible study time, as I haven't spent the time studying
like I do at home. I miss that. I NEED that. I also want
to have a good cry. That always helps. But crying doesn't
come easily to me, and sometimes it happens at the WORST
times. I know the other Lovelaces need me--it's hard when
mama is gone. We need zoo time and movie time and silly
time and time away from doctors. I'm looking forward to
So please keep in touch. Let
us know how we can pray for you. Share your thoughts and
insights with us.
We love you so much,
Lygia, for all
© 2014. Faith Matters by Lygia Lovelace. All rights